- AHEPA NSW
Rett Syndrome Fundraiser (17/2/17)
Friday, 17 February 2017 – 7:30 pm
Ashbury Bowling Panarcadian Federation Club 51-55 King St, Ashbury
Guest Speaker: Professor John Christodoulou* AM
The cost per person is $50.00 dinner only (drinks not included)
Children under 12 years free
‘Silent Angels’ is a term known for children with Rett syndrome which is a debilitating genetic disorder, the second most common form of severe intellectual disability in females.
Children with this disorder develop normally for the first 6 months. After that, their development stops and starts to decline. Patients lose their speech, their ability to crawl or walk and their ability to control hand movements. They also demonstrate a slowed brain and head growth and autistic-like behaviour. Many suffer from seizures and autonomic irregularities with the latter being the major cause of death. Affected individuals need lifelong support and will never be able to live independently.
The care required for a young woman with Rett syndrome is comparable to that required for a high-level quadriplegic.
RSVP: Friday, 10 February 2017
Steve Georgiou 0414 619 215 -- email@example.com
Sophia Karis 0402 542 970 -- firstname.lastname@example.org
Vivian Nikolareas 0418 668 710-- email@example.com