Rett Syndrome Fundraiser (17/2/17)

Wednesday, January 18, 2017





Friday, 17 February 2017 – 7:30 pm


Ashbury Bowling Panarcadian Federation Club 51-55 King St, Ashbury


Guest Speaker: Professor John Christodoulou* AM


The cost per person is $50.00 dinner only (drinks not included)

Children under 12 years free


‘Silent Angels’ is a term known for children with Rett syndrome which is a debilitating genetic disorder, the second most common form of severe intellectual disability in females.

Children with this disorder develop normally for the first 6 months.
After that, their development stops and starts to decline. Patients lose their speech,
their ability to crawl or walk and their ability to control hand movements.
They also demonstrate a slowed brain and head growth and autistic-like behaviour.
Many suffer from seizures and autonomic irregularities with the latter being the major cause of death. Affected individuals need lifelong support and will never be able to live independently.

The care required for a young woman with Rett syndrome
is comparable to that required for a high-level quadriplegic.


RSVP: Friday, 10 February 2017


Steve Georgiou 0414 619 215 --

Sophia Karis 0402 542 970 --

Vivian Nikolareas 0418 668 710--









Please reload

Featured Posts

VIDEO: Τμήμα Ανατολή - Κοπή Βασιλόπιτας 2018 (13/1/18)

January 17, 2018

Please reload

Recent Posts

October 22, 2019

Please reload

Follow Us
  • Facebook Basic Square
  • Twitter Basic Square
  • Google+ Basic Square

Copyright © AHEPA NSW 1934-2018

Australian Hellenic Educational Progressive Association

  • Facebook - White Circle
  • Twitter - White Circle
  • Google+ - White Circle
  • YouTube - White Circle
  • Pinterest - White Circle
  • Instagram - White Circle

Designed & Created by

QuestionPro's advanced survey features powers our data intelligence, allowing us to create surveys, collect responses, distribute critical information, and analyze results.