Rett Syndrome Fundraiser from Ippokratis (17/2/17)

Friday, February 17, 2017

 

 

Μεγάλη επιτυχία γνώρισε η εκδήλωση την οποία οργάνωσε το Τμήμα Ιπποκράτης του AHEPA NSW.  Πάνω από 160 άτομα βρέθηκαν στο Ashbury Bowling Panarcadian Club με σκοπό να συγκεντρωθούν χρήματα για το Rett Syndrome.

 

Βασικός ομιλητής ήταν ο Professor John Christodoulou. Επίσης σύντομους λόγους έβγαλαν ο πρόεδρος του Ιπποκράτη κ. Γιώργος Κάρης και ο πολιτειακός πρόεδρος κ. Γιάννης Καλλιμάνης.

 

‘Silent Angels’ is a term known for children with Rett syndrome which is a debilitating genetic disorder, the second most common form of severe intellectual disability in females.


Children with this disorder develop normally for the first 6 months.
After that, their development stops and starts to decline. Patients lose their speech,
their ability to crawl or walk and their ability to control hand movements.
They also demonstrate a slowed brain and head growth and autistic-like behaviour.
Many suffer from seizures and autonomic irregularities with the latter being the major cause of death. Affected individuals need lifelong support and will never be able to live independently.

 

 

 

 

 

 

 

 

 

 

 

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